Patient-reported outcome measures in subarachnoid ... Psychometric properties of the Brazilian version of the stroke specific quality-of-life scale: Application of the rasch model. Trunk Control Test. It comprises comprised 49 items in 12 domains, with two subscores and a total score. Lin, K.-C., Fu, T., et al. English SS-QoL 2.0 was first adapted to Yoruba language by including Yoruba culture . Purpose. The discussion and use of QOL as a measurable outcome in health has increased in recent decades as healthcare has shifted from a disease-focused biomedical model to a more holistic, well-being focused biopsychosocial model. Development of a stroke-specific quality of life scale. . 2.5. Recommendations during this phase include management of specific losses and limitations that arise following a stroke (include: cognition; communication; continence) and contain recommendations for specific impairments (e.g. Translations. Assessing the Stroke-Specific Quality of Life for Outcome ... Methods Secondary analyses of three different studies. 36-Item Short Form Survey (SF-36) - Physiopedia Non-availability of SS-QoL 2.0 in Hausa, the indigenous language of Northern Nigeria has restricted its use in Hausa stroke-survivors (SSV). Approximately 130,000 individuals experience a first-ever stroke per annum.In addition to widely applicable pharmacological treatment for acute stroke, effective prevention and rehabilitation . 3, 2010, pp. 1999) as a single measure for the assessment of HRQOL in this population. (2010). 86-91.doi: 10.3109/13682820109177864 Methods: Secondary analyses of three different studies. . Purpose This study compared the responsiveness and criterion-related validity of the Stroke Impact Scale (SIS) and Stroke-Specific Quality of Life Scale (SS-QOL) for 35. Items in the American version of the Stroke Specific Quality of Life (SS‐QoL) Scale are developed with help from patients with stroke and include even language impairments. Background: Stroke is a leading cause of activity limitation and participation restriction that negatively affect health . The Stroke Specific Quality Of Life scale SS-QOL: It is a patient-centered outcome measure intended to provide an assessment of health-related quality of life (HRQOL) specific to patients with stroke only. The aim of this study was to validate the Stroke Specific Quality of Life (SS-QoL) scale for patients with SAH. Background and purpose: Stroke has an effect on many aspects of quality of life (QoL) and therefore it is important to measure the magnitude of the impact. Stroke Specific Quality of Life Scale (SS-QOL) - getting out of chair mobility scale : SSQOLGetOutChairMobScale : The scale for trouble getting out of a chair based on Stroke Specific Quality of Life Scale (SS-QOL). Methods Cross sectional survey of 141 aneurysmal SAH patients. driving), restricted social participation and quality of life (e.g. These 12 domains were found to be unidimensional and responsive to change . A short version of the SS-QoL was developed and tested here. Introduction. Stroke Impact Scale (SIS) 94 1 2 4 4 4 1 4 4 Stroke Rehabilitation Assessment of Movement—Mobility Subscale (STREAM) 95 3 3 3 3 3 3 3 3 Stroke Rehabilitation Assessment of Movement—Limb Subscales (STREAM)95 4 4 4 4 4 4 4 4 Stroke-Specific Quality of Life Scale 94 1 1 2 1 2 2 2 2 A Structured process was followed for obtaining permission from hospital authority To evaluate QoL, we applied the Stroke Specific Quality of Life Scale (SS-QoL). SS-QoL scores were different between groups opposed by their modified Rankin score at enrolment or their overall quality of life compared with pre-stroke status (p < 0.001). Internal consistency was acceptable (α= 0.65-0.91), except for the Personality domain (α= 0.58). Quality of life (QOL) is a multidimensional concept that measures a person's wellbeing. Stroke Impact Scale; Stroke Specific Quality of Life; See the full 141 page review. 20% of cases are a hemorrhage in the brain caused by a rupture or leakage from a blood vessel. The scale for trouble getting out of a chair based on Stroke Specific Quality of Life Scale (SS-QOL). The Chinese version has had been previously validated in a local SAH population . Stroke is a leading cause of activity limitation and participation restriction that negatively affect health-related quality of life (Duncan et al. Find it on PubMed S t r o ke S p eci f i c Q u al i t y of L if e S ca l e (S S - QOL) Scoring: each item shall be scored with the following key Total help - Couldn't do it at all - Strongly agree 1 11 consists of 49 items covering 12 domains: Mobility, Energy, Upper Extremity Function, Work and Productivity, Mood, Self-Care, Social Roles, Family Roles, Vision, Language, Thinking and Personality. Of the stroke-specific scales, the Stroke-Specific Quality of Life Scale (SS-QOL) , in addition to the Stroke Impact Scale version 3.0 (SIS 3.0) , is the most comprehensive and frequently used patient-reported outcome measure [16-19]. 20. This study aimed at the cross-cultural adaptation of SS-QoL 2.0 to Yoruba, the indigenous language of south-western Nigeria, and to carry out an initial investigation on its validity. The certainty of evidence was very low. Please choose the answer that appears most appropriate. Background: The Stroke Impact Scale (SIS) is a stroke-specific, quality of life measure recommended for research and clinical practice. The Stroke Specific Quality of Life 2.0 (SS-QoL 2.0) is a widely used scale that has been cross-culturally adapted to many languages including Yoruba, one of the three major Nigerian languages. Here the . The 9 included articles assessed 7 different PROMs: EuroQol 5D (EQ-5D), Health Utility Index (HUI), mRS, Quality of Life after Brain Injury overall scale (QOLIBRI-OS), Subarachnoid Haemorrhage Outcome Tool (SAHOT), Stroke-Specific Quality of Life scale (SS-QoL), and the short version of the SS-QoL. Psychometric evidence is necessary to establish scientific integrity and clinical usefulness of translations and cultural adaptations of the Stroke-Specific Quality of Life (SS-QoL) scale. SS-QoL scores were different between groups opposed by their modified Rankin score at enrolment or their overall quality of life compared with pre-stroke status (p < 0.001). Crossref Medline Google Scholar; 9 Williams LS, Weinberger M, Harris LE, Clark DO, Biller H. Development of a Stroke-Specific Quality of Life Scale. The Stroke Also called a "brain attack" and happens when brain cells die because of inadequate blood flow. METHODS: The construct validity and reliability was examined using the Rasch model; the . () It includes 12 domains that cover traditional health-related QOL topics (e.g., social and psychological measures) and stroke specific topics (e.g., language, mobility, vision, and upper . Hilari, K. and Byng, S. (2001). 435-43. This study was conducted to adapt the preliminary . We are currently running a medium scale study (80 participants) which aims to explore the HRQOL of people with long-term aphasia and to assess the psychometric properties and the acceptability of the Stroke Specific Quality of Life Scale (SS-QOL) (Williams et al. Stroke-Specific Quality of Life (SS-QOL) scale, version 2.0, by Williams et al. The objective of the present work was to assess the reliability and validity of the previously translated Spanish . Stroke Impact Scale Stroke Specific Quality of Life . Background and purpose: Stroke has an effect on many aspects of quality of life (QoL) and therefore it is important to measure the magnitude of the impact. primary caregiver) [3]. 1999; 30: 1362-1369. This study was aimed at cross-culturally adapting SS-QoL 2.0 . Lin, Keh-Chung, et al. 36. US Agency for HCP&R by . 19, no. Ten of the twelve domains correlated moderately (ρ> 0.35) to strongly (ρ> 0.5) with . Stroke and Aphasia Quality of Life Generic Scale-39 (SAQOL-39g) is a disease-specific questionnaire that measures HRQOL of patients with stroke. 28 Muus, I. , Williams, L. S. , & Ringsberg, K. C. (2007). (2009). RESEARCH ARTICLE Comparison of construct validity of two short forms of Stroke-Specific Quality of Life scale Chia-Yeh Chou1,2, Chien-Yu Huang3, Yi-Jing Huang2, Gong-Hong Lin2, Sheau- Ling Huang2,4, Shu-Chun Lee2,5, Ching-Lin Hsieh2,4,6* 1 Department of Occupational Therapy, College of Medicine, Fu-Jen Catholic University, New Taipei City, Taiwan, 2 School of Occupational Therapy, College of . Google Scholar. A. Stroke-Specific Quality of Life 2.0 (SS-QoL 2.0) scale is used widely and has been cross-culturally adapted to many languages. (Stroke-Adapted Sickness Impact Profile-30) to 78 (Stroke-Specific Quality of Life Scale). The Stroke-Specific Quality of Life (SS-QOL) scale [18] additionally covers domains related to fatigue, personality change, and vision. Stroke-Specific Quality of Life (SS-QOL) Scale is one of the commonest disease-specific quality of life measures initially developed and validated for ischemic stroke patients. It comprises 36 questions which cover eight domains of health: 1) Limitations in physical activities because of health problems. Buy products to support Physiopedia and it's mission to educate the global physiotherapy and physical therapy community. The aim of this study was to develop a psychometrically validated Spanish version of the Newcastle stroke-specific quality of life measure (NEWSQOL). The SS-QOL is a patient-centered outcome measure intended to provide an assessment of health-related quality of life specific to patients with stroke. Introduction [edit | edit source]. A stroke-adapted 30-item version of the Sickness Impact Profile to Assess Quality of Life (SA-SIP30). Objective: To test the reliability and validity of the Danish version of the Stroke Specific Quality of Life Scale version 2.0 (SS-QOL-DK), an instrument for evaluation of health-related quality of life. Methods Cross sectional survey of 141 aneurysmal SAH patients. 2) Limitations in social activities because of physical . Stroke -Specific Quality of Life Scale. Stroke Speci!c Quality of Life Scale (SS-QOL) Scoring: each item shall be scored with the following key Total help - Couldn't do it at all - Strongly agree 1 A lot of help - A lot of trouble - Moderately agree 2 Some help - Some trouble - Neither agree nor disagree 3 A little help - A little trouble - Moderately disagree 4 If you are unsure about which response to give to a question, the first response you think of is often the best one. Aim: To test the reliability and validity of the Turkish version of the Stroke‐Specific Quality of Life Scale (SS‐QOL). A short version of the SS-QoL was developed and tested here. Stroke-Specific Quality of Life Scale was initially generated and constructed by identification of the 12 commonly affected domains in poststroke patients in 1999 . Stroke-Specific Quality of Life (SS-QOL) Scale is one of the commonest disease-specific quality of life measures initially developed and validated for ischemic stroke patients. This study compared the construct validity of 2 short-forms of the 12-item-SSQOL (not the 12-domain-SSQOL). Methods Secondary analyses of three different studies. One trial (41 participants) reported quality of life using the Stroke Specific Quality of Life Scale. The SSQOL questionnaire has been translated into Danish and Ger- The short version was developed using data from 141 patients with . Stroke is a leading cause of mortality and morbidity worldwide. spasticity), activity limitations (e.g. Stroke. Hakverdioğlu Yönt G. & Khorshid L. (2012) Turkish version of the Stroke‐Specific Quality of Life Scale. Background: Stroke causes a wide variety of clinical manifestations that may have a negative impact on quality of life. Completion of the questionnaire takes took about 15 min. Background and purpose The Stroke Specific Quality of Life Scale (SS-QoL) is a well validated measure of health related quality of life in patients with stroke, but with 49 items its length is a disadvantage. OBJECTIVE: To examine the measurement properties of a short version of the Stroke-Specific Quality of Life Scale (SS-QoL-12). Methods: A prospective cross-sectional study, included 80 stroke patients, was conducted in the Neurology department at King Fahad Hospital of the University (KFHU), Khobar . responsive stroke-specific quality of life (SS-QOL) mea-sure, designed for use in stroke clinical trials. French validation of the Stroke Specific Quality of Life Scale (SS-QoL). 6 of 141 www.ebrsr.com Orpington Prognostic Scale Stroke Rehabiliation Assessment of Movement Six Minute Walk Test Timed Up and Go Wolf Motor Function Test International Nursing Review59, 274-280. Measuring quality of life in people with aphasia: The Stroke Specific Quality of Life Scale. This study assessed the test-retest reliability, internal consistency, convergent . This study assessed the test-retest reliability, internal consistency, convergent . Each domain is measured by three to six items using a 5-point (1 . Patients: A total of 126 patients provided 252 observations before and after treatment. International Journal of Language & Communication Disorders, 36(2), pp. A short version of the SS-QoL was developed and tested here. 21, no 7, p. 620-7 Article in journal (Refereed) Published Abstract [en] OBJECTIVE: To test the reliability and validity of the Danish version of the Stroke Specific Quality of Life Scale version 2.0 (SS-QOL-DK), an instrument for evaluation of health-related quality of life. Cambridge University Press, New York. Methods Data were obtained from a previous validation study of the original 49-item SSQOL in 263 patients. Completion rates are suboptimal and could relate to test burden. However, the limited evidence on psychometrics of Yoruba version of SS-QoL 2.0 (SS-QoL(Y)) is a significant shortcoming. In the UK, stroke is the third most common cause of death and the main cause of acquired disability. QOL has also become more important with improvements in medical treatments and . There is a paucity of stroke-specific instruments to assess health-related quality of life in the Norwegian language. Domains rated as most affected vary across studies, with . In most cases Physiopedia articles are a secondary source and so should not be used as references. 3 translation (s) Bibliographic reference (s) of the original questionnaire. Objectives: To assess the overall and domain-specific quality of life (QOL) in post-stroke patients using the stroke-specific quality of life (SS-QOL) scale and to identify variables that may affect the QOL after stroke. Waters E, Shelly A, Davis E. Chapter 9: Condition-specific instruments to measure the Quality of Life (QOL) of Children and Adolescents with Cerebral Palsy (CP). Crossref Medline Google Scholar It stems from a study called the Medical Outcomes Study. "Psychometric comparisons of the Stroke Impact Scale 3.0 and Stroke-Specific Quality of Life Scale." Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care & Rehabilitation 19(3): 435-443. related QoL has been evaluated, the disease-specific Stroke Specific Quality of Life Scales (SS-QOL) scale has been used frequently (9,18,19,20,21). Find it on PubMed. 80% of cases are also know as a "schemic stroke", or the formation of a blood clot in a vessel supplying blood to the brain. To develop a comprehensive stroke-specific patient-based measure so that the impact of neuroprotective drugs and other therapeutic interventions on quality of life (QoL) can be fully assessed; to facilitate the assessment of post-stroke QoL in clinical practice. Stroke 1999; 30:1362-9 (Full text article) 1997; 28: 2155-2161. Factor analysis individualized eight homogenous axes. median Stroke Impact Scale score (range) 17 (0вЂ"64) for example, a score of say 6 from complete data is not the same as a score of 6 from incomplete data. PRO. Book Chapter in Jenkinson C, Peters M, Bromberg MB (eds).